It
seems there are some that read my blog that homeschool as well. Many times I am
asked the question: “How do you homeschool while sick?” Well, the simple answer
to this question is that I do what I can when I can do it and try not to worry
too much about the rest.
Monday, February 25, 2013
Homeschooling
Wednesday, February 20, 2013
Had to Share
Wonder what all this talk of Spoons is about? Check it out and share with family and friends!
http:// www.butyoudontlooksick.com/ wpress/articles/ written-by-christine/ the-spoon-theory/
PDF Version: http:// www.butyoudontlooksick.com/ wpress/wp-content/uploads/ 2010/02/ BYDLS-TheSpoonTheory.pdf
http://
PDF Version: http://
Tuesday, February 19, 2013
Top Ten Tuesdays
There are so many books out there, I can scarcely pick 10, but here is my attempt in no particular order:
Top
Ten Books I Can Read Over and Over
1. The Holy
Bible
2. Don
Quixote
3. The
Canterbury Tales
4. The
Great Gatsby
5. Great
Expectations
6.
Fahrenheit 451
7. The
Illustrated Man
8. Anything written by Beverly Lewis
9. The Time
Traveler’s Wife
10.
Sundays at Tiffany's
Wednesday, February 13, 2013
Grieving Continued…
I’ve
continued to read “Coping with Chronic Illness” by H. Norman Wright and Lynn
Ellis and have received such encouragement and blessing; I just have to share
it.
I’m still reading about grief and what it means for a person dealing with chronic illness. Sadly, this past year I had to deal with grief in the form of the untimely death of my beloved mother. Suffice it to say that I have had to deal with grief in the form of death, and now I have to deal with it in the form of a life altered by chronic illness. Even though the two are quite different, the process of grief is basically the same.
I’ve learned that I am “stuck” in this whole grieving process. Instead of just going through the process, I’m holding on to the feelings of loss and what might have been. When we get “stuck” in this area, it is hard to dig ourselves out of this pit of despair. Emotions are supposed to help us cope and move on, but in some instances, while they are meant to be here for a season, at times they seem to linger. Sometimes we just can’t seem to let them go, hence the “stuck” part. At times these emotions can take up permanent residence and prevent us from moving forward, finding and implementing new coping skills.
So… I am “stuck”. I don’t want to be, but I am still grieving the loss of my old self. It is hard for me to find my new “normal” and to get on with my life. I miss the old me, all the things I used to do and be able to do that now don’t even seem to be in my future anymore. I grieve for my husband and my children and the wife and mother that they once knew, but is now gone and may never return. For the sake of them and myself; I must regain, reboot and reorder my life. I must pick myself up by the bootstraps and keep on keeping on. I owe it to them and to myself. In order to move on I must face the painful reality of my situation. I must overcome my denial and wishful thinking that things will ever be the same again, because the simple fact is, is that things might never be the same. Please don’t mistake this for hopelessness; as I’ve always said, at times I might be helpless, but I shall never be hopeless! I have no control over my body or my physical state; what I do have control over, however is how I choose to react and respond to the issues at hand. One day at a time, one hour at a time, one minute at a time, and sometimes one second at a time.
I n
the above book, the authors ask and answer this question: “What can you expect
from grief?” (P.104-105)
· Your grief will take more time and energy than you ever imagined.
(19) Rando, Grieving, p. 19, adapted.
I have a loooong way to go, but go I will, defeat this grief, find the new me and joyfully exchange it for the old.
This is my hope, not only for my family and me, but for all who suffer with chronic illness.
After all, we may be helpless at times, but we shall never be hopeless J
I’m still reading about grief and what it means for a person dealing with chronic illness. Sadly, this past year I had to deal with grief in the form of the untimely death of my beloved mother. Suffice it to say that I have had to deal with grief in the form of death, and now I have to deal with it in the form of a life altered by chronic illness. Even though the two are quite different, the process of grief is basically the same.
I’ve learned that I am “stuck” in this whole grieving process. Instead of just going through the process, I’m holding on to the feelings of loss and what might have been. When we get “stuck” in this area, it is hard to dig ourselves out of this pit of despair. Emotions are supposed to help us cope and move on, but in some instances, while they are meant to be here for a season, at times they seem to linger. Sometimes we just can’t seem to let them go, hence the “stuck” part. At times these emotions can take up permanent residence and prevent us from moving forward, finding and implementing new coping skills.
So… I am “stuck”. I don’t want to be, but I am still grieving the loss of my old self. It is hard for me to find my new “normal” and to get on with my life. I miss the old me, all the things I used to do and be able to do that now don’t even seem to be in my future anymore. I grieve for my husband and my children and the wife and mother that they once knew, but is now gone and may never return. For the sake of them and myself; I must regain, reboot and reorder my life. I must pick myself up by the bootstraps and keep on keeping on. I owe it to them and to myself. In order to move on I must face the painful reality of my situation. I must overcome my denial and wishful thinking that things will ever be the same again, because the simple fact is, is that things might never be the same. Please don’t mistake this for hopelessness; as I’ve always said, at times I might be helpless, but I shall never be hopeless! I have no control over my body or my physical state; what I do have control over, however is how I choose to react and respond to the issues at hand. One day at a time, one hour at a time, one minute at a time, and sometimes one second at a time.
· Your grief will take more time and energy than you ever imagined.
·
Your grief will involve many changes.
·
Your grief will show itself in all
spheres of your life.
·
Your grief will depend on how you perceive
your chronic illness losses.
·
You will grieve for what you have
lost already and for what you have lost for the future.
·
Your grief will entail mourning for
the hope, dreams, and unfulfilled expectations you held.
·
Your grief will involve a wide
variety of feelings and reaction, more than just the general ones often
depicted with grief, such as depression and sadness.
·
Your losses will resurrect old
issues, feelings, and unresolved conflicts from the past.
·
You may experience a combination of
anger and depression, such as irritability, frustration, annoyance, and
intolerance.
·
You will feel some anger and guilt--or
at least manifestations of these emotions.
·
You may experience “grief spasms--acute
upsurges of grief that occur without warning.
·
You will have trouble thinking about
memories, organizational tasks, intellectual processing, and making decisions,
depending on your illness.
·
You may feel like you’re going crazy.
·
You may find yourself acting socially
in ways that are different from before.
·
You may feel isolated.
·
You may find yourself having a number
of physical reactions other than your illness.
·
Others will have unrealistic
expectations about you and may respond inappropriately to you (19).
·
The uncertainty of what the future
hold denies you the luxury of grieving fully (20).
(19) Rando, Grieving, p. 19, adapted.
(20)
Chris McGonigle, Surviving Your Spouse’s
Chronic Illness” (New York:
Henry Holt and Co.,
1999), p. 20.
I have a loooong way to go, but go I will, defeat this grief, find the new me and joyfully exchange it for the old.
This is my hope, not only for my family and me, but for all who suffer with chronic illness.
After all, we may be helpless at times, but we shall never be hopeless J
Tuesday, February 12, 2013
Top Ten Tuesdays
I have decided to do a blog post called “Top Ten
Tuesdays”. Since I am fairly self-centered, these lists are going to be Top
Tens that relate to me. The first part of recovery is admitting you have a
problem, right?? Since I’ve chosen for this blog to be relatively anonymous,
many people don’t know that much about me. Where can I let others in without
(hopefully) being judged if not my own, personal blog? These lists will be in no particular order because
that would just take too much energy.
Some lists will be serious; some will be silly;
it will all depend on how I’m feeling on that particular Tuesday.
Here goes my first Top Ten:
Top Ten Things That
Annoy Me About Dealing With A Chronic Illness:
(This
should probably be The Top 100 things…)
1. Trying to find my “new” normal. I’d love to
just have my old normal back. I’d even settle for half-way normal; I’m not too
demanding
2. People asking me “How are you?” I know they
mean well most of the time, however I think that this particular question is
overrated. I always pause before answering. I’d think to myself, do you really
want to know, or should I just lie and say “I’m fine.”? I usually choose the
latter because the person probably doesn’t really want to know how I am and/or
I don’t have the time or energy to explain how I’m really feeling.
3. When people say “Wow, you look great! Have you
lost weight?” This comment at first glance is one that I think most people, women
especially would find a compliment, however when dealing with chronic illness,
this comment can set off a variety of feelings. In my case, unfortunately they
are not often too positive. First off, if I felt remotely as good as someone
might think I look; I’d be doing better than alright. Just because I have
make-up on and a pressed skirt doesn’t mean that I’m not falling apart on the
inside. Secondly, yes, I have lost weight, but certainly not because I’ve
tried. I would gladly take the thirty pounds I’ve lost over the last few years
and tack it right back on (and then some maybe) if it meant I could kick this
whole POTS thing.
4. When someone assumes that I must be cured
because they saw me out and about in town. If I’m out and about, I’m usually
accompanied by Big Handsome (aka my chauffeur) and/or my children (my dd being
the fill-in chauffeur). Most of the time he/they has/have to practically drag me
out of the house because if he/they didn’t, I’d surely become a hermit. It’s
pretty sad when taking a trip to the grocery store is an accomplishment.
5. Not getting enough sleep. I have constant
ringing in my ears (tinnitus) which is akin to having a swarm of vicious
crickets swirling around in my head. There is no way to get rid of it/them. I
so wish they’d find somewhere else to chirp. As a result, I have an intimate
relationship with Netflix via my Nook. I’ve watched so many shows and movies,
I’ve lost count. I watch until my eyes can no longer stay open and many a
morning I wake to find my Nook, on top of, beside, or underneath me.
6. Missing out on the lives of my children. As my
children grew into teens, I so looked forward to the time when I could take my
dd out to Starbucks and enjoy a coffee and conversation about life or just go
to the mall for some girl-time. I would love to take my ds to the nearest army
surplus and/or gun store (he’s a collector) and have some mother-son time. We
used to be so active together going on field trips, park days, science classes
at the local hammock, music lessons, gymnastics, church functions, playdates,
going to museums, taking the train downtown and so much more. I miss those days
terribly and would give anything to have them back.
7. Feeling the need to say “I’m sorry” all the
time.
8. Anxiety annoys me. I have anxiety about my
anxiety and I don’t like it one bit.
9. I am annoyed by the fact that I can’t take
care of my family the way I used to. I used to cook, clean, school the kids, do
the yard work complete with mowing and weedeating, do the grocery shopping and
any other shopping that needed to be done. Now it seems as though I can hardly
do a thing without some sort of assistance. I guess it annoys me that I am so
needy.
10. This has nothing to do with dealing with
chronic illness, but annoys me none the less: slowing to a stop to let someone
walk across the way and them not even bothering to acknowledge your act of
kindness. Seriously, it annoys me that people can be so rude!
Be on the lookout for my next installment of Top
Ten Tuesdays J
Monday, February 11, 2013
Life Is What Happens When You’re Busy Making Plans
Life happens when you’re busy making plans is
something Big Handsome always says. It is so true at times. Before I got sick,
I was a big-time planner. Practically everything I did had to be planned, still
does to some extent, but I am slowly, painfully learning that life happens when
you’re busy making plans.
When you’re diagnosed with a chronic illness and
your life is turned upside down and basically what you used to do and be seem to
be nonexistent; it makes it kinda hard to plan for anything. Sometimes the
opposite happens and I tend to want to plan everything that is going to happen.
This can be nearly impossible and can really wreak havoc on life in general.
I am basically and pretty much always have been a
control freak. I like to know what is going to happen, when it will be
happening, how long it will take to happen and when it will end. With chronic
illness, those questions almost always go unanswered. This probably stems from
my father who would always have every vacation planned down to our bathroom
breaks (I’m not quite that bad). I’ve had to learn to “go with the flow” which
is NOT easy for me in the least.
We have family members that are quite
spontaneous. It drives me NUTS!! They make plans on the spur of the moment that
include us and I am now finally comfortable to decline most invitations. My
problem comes in the form of resentment when this happens. I guess I’ve always
held to the idea of, “A lack of planning on your part doesn’t constitute and
emergency on my part.” I realize this is a whole other story; I’ll probably
save that for another blog post in the future.
Even still though, I try to control things in my
life. I don’t think this is too crazy, because in the life of a person with
chronic illness, there is so much that we cannot control, I feel the need to
control the few things that I might just have control over.
Wednesday, February 6, 2013
Here's To My Big Handsome
My Big Handsome is more than I could have ever
wished for in a husband. He is loving, kindhearted, generous, doting, strong,
full of integrity, oh, I could go on and on and on.
I call him My Big Handsome because he is just
that, tall, dark and oh, so very handsome. He is so much more though. He is my
soul mate, my best friend, lover, husband and a truly awesome dad to our
children.
He has always been my sounding board and my voice
of reason. When I was diagnosed with this horrendous illness, he was right by
my side and hasn't left since. He is the epitome of strength. He constantly
reminds me of his love for me and the fact that we will get through this
together.
Every morning I sit in my covered porch and check
my email, have my coffee, and enjoy some alone time before the gems get up. I
look forward to this daily as My Big Handsome writes me little love notes each
morning. Sometimes it's just a simple "I love you" other times they
come in the form of poetry or song lyrics. They lift my spirits each morning
and they are one of the reasons I get out of bed every day.
Having this illness has turned our household
upside down. It keeps me, at times from enjoying even the simplest things in
life. I hold fast to my faith and am so thankful that the Lord lead me to My
Big Handsome. He couldn't have chosen better for me.
I know that living with me and my current
physical state can be frustrating at times for My Big Handsome, but he somehow
keeps it all together for all of us and I pray that the Lord blesses him
immensely.
This is not to say that he is perfect, but I'll
tell you one thing, he is perfect for me.
After 21 years of marriage, I can honestly say
that to love and be loved is a gift, but to have that and be "in
love" too is truly a blessing, and one that I don't take lightly. You see,
love is not a feeling, it's an act of your will. I'm so grateful that My Big
Handsome chooses to love me...warts and all.
Here's to My Big Handsome...I love you more than
words can say.
My Big Handsome always knows when I need a
pick-me-up!
(source: Pinterest)
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